Useful Patient Information and Links to Organisations
Lupus UK Meetings
Pennine MSK Partnership hold informal meetings for patients with lupus in partnership with Lupus UK at the Integrated Care Centre in Oldham. This provides an opportunity for patients with lupus to meet others who share their experience of the condition and to speak with a representative from Lupus UK regarding support services available. Hot topics include dealing with fatigue, pain and low mood and recent changes to the benefits system. We are grateful to Val Wilson and colleagues from Lupus UK for giving their time to support this initiative.
The next meeting is TBC
Anyone with Lupus who is under the care of Pennine MSK is welcome to attend these meetings which are held bi-annually. For further information please contact Charlotte Critchley, Occupational Therapist on 0161 621 3838, alternatively email email@example.com
National Rheumatoid Arthritis Society Support Group
Aim: To bring together people living with Rheumatoid Arthritis to share information, mutual support and to progress improvements in patient care within our local area.
NRAS is encouraging people with Rheumatoid Arthritis living in the area to attend meetings and find out more about their disease, local rheumatology services and the invaluable services on offer from NRAS.
NRAS – helping people living with RA to have a better life by:
Providing a comprehensive website with information on RA from health professionals
Offering information on living with the condition and better self management
Providing a free-phone helpline, available 9.30 to 4.30, Monday to Friday
Contributing to improving standards of care for RA
Lobbying the Government for a better deal for people living with RA in the UK
Being a one-stop shop for people with RA.
Oldham NRAS Group aims to provide:
A meeting point for people living with RA, to network and support one another, reducing the isolation felt by some
A means of ongoing patient education and improvement of disease self management
A strong “patient voice” in your area
These meetings are held at **The Neon Hub, Holt Street, Greenacres OL4 2DQ** 7:00pm – 8:30pm
Date of next meeting:
17th March - Guest Speaker, Dr James Bluett will talk about the results of the “Cloudy with a chance of Pain” research study and other relevant research results too.
Future meeting dates: (guest speakers to be confirmed)
For more information please contact NRAS directly 0845 458 3969 or email firstname.lastname@example.org
NRAS Helpline: 0800 298 7650
You can follow the Oldham NRAS group on Facebook : Rheumatoid Arthritis Nras Oldham Support Group where you will find more information on future plans and activities!
To be added to the emailing list to receive notifications of future meetings or for more information about the group please email: email@example.com or call 01628 823 524 and ask for Kim or Gill.
Oldham Benefits Advice – gives free advice including support with appeals, tribunal preparation and benefit entitlement 0161 770 6655
Oldham Welfare Rights Service - general advice 0161 770 6633
Oldham Social Services 0161 770 7777
Oldham Independent Living Shop and Showroom - offers a large number of services, support groups and signposting facilities for residents with a disability or feel they have vulnerability or some form of additional need, carers and professionals.
There is also an Age UK shop which provides assistive technology demonstration rooms where you can try out and purchase assistive equipment 0161 770 4786 firstname.lastname@example.org
Oldham Early Help - is an integrated support service for individuals, households and families of any age that have some problems that need support to stop them getting worse or reaching crisis point. It also helps people who had problems that now need some further help to develop their support networks 0161 770 6672
The Princess Royal Trust Carers Centre Oldham - may be able to offer you free and impartial support, for example carer assessment and support, benefits for carers, advocacy service and a guide to local services 0161 770 1188
Arthritis Research UK publications are specifically designed to help people affected by arthritis to understand more about a particular condition and its treatment, including the disease modifying drugs. read or download lots of information about living with arthritis and read about the latest research.
National Rheumatoid Arthritis Society (NRAS)
Freephone 0800 298 7650 to receive information and support if you have RA, including the option to speak with a trained telephone support volunteer with RA at a mutually convenient time about whatever aspect of your RA concerns you most.
Oldham have their own NRAS support group which runs bimonthly on a Tuesday evening – click here for details or speak to your rheumatology team.
Prescription Prepayment Certificate (PPC) If you take 3 or more prescribed medications, a PCC can save you money on prescription charges. For further information, up to date prices and how to apply visit the website or call 0845 850 0030
Age UK gives information on Money matters, health and well-being (including befriending service and social activities in the Oldham area) home and care, work and learning and travel and lifestyle advice.